Forrest was carried through the long day by your collective prayer, positive energy, and faith. He is breathing on his own but is still intubated and will be transferred to ICU shortly. Even Toliver is vid ably relieved. We will see Forrest soon and tell him of the love and fellowship that surrounds him. Then we will stumble back to our rooms and the dinner Tami is keeping warm for us. His faithful nurse Dawn will be by his side through out the night to reassure him should he waken.
Wednesday, August 27, 2014
Let the Healing Begin
We just spoke to Forrest's surgeon Who is very pleased with the outcome. He had to deal with several complications primarily related to excessive scar tissue from previous surgeries. He says if the flap looks good this time tomorrow night he will be a happy man and the next 4 -5 days will be the most critical.
Waiting Still
We knew this was going to be a long day and are grateful for all the prayers, good wishes, and positive energy flowing to Forrest and his surgical team.
Forrest has been in the OR for 10 1/2 hours now and the nurse just told us to expect two more hours. Toliver has made the waiting more tolerable, adding his special charm to the waiting area and shaking paws with small children. Clearly though he misses his Forrest as do we,
Hopefully we'll have good news soon.
Mum & Pops
Update from Johns Hopkins
Forrest was in fine form this morning joking with his nurses and doctors, he had everyone in preop in "stitches". Toliver was at his bedside with his adoring eyes. When it was time to start, I accompanied Forrest into OR and held his hand. We spoke about the good times ahead, his upcoming musical, trips to Hawaii, his father's famous steak. We requested reggae and Forrest drifted off to Bob Marley singing One Love.
As Rev. Banse promised Forrest, last Sunday, God is with Forrest today, before him, behind him, and all around him. The circle of prayer taking place at Trinity Church this morning, as Forrest's surgery began, gives us all confidence and faith that Forrest's future is in good hands.
Prayers of thanksgiving for the love, faith and support of our family and friends and for the expert care and tender touch of Johns Hopkins doctors and nurses.
Mum
Sunday, August 24, 2014
Prayer Service Wednesday
We are counting our blessings every day. Today we focused on our blessings of faith, family, and friends. We spent the morning at Trinity Episcopal Church in Upperville, where Forrest and Toliver were warmly greeted by old friends and new. It is such a lovely place filled with love, faith, and peace.
After the service we were able to visit the outdoor chapel in the sanctuary behind the main church. It's a beautiful and peaceful space filled with wildflowers, trees, and pastoral views of our Virginia countryside. Our dear friend Shannon has organized a prayer service for Forrest there on Wednesday and we wanted to stand with Forrest in this hallowed space.
Here are the details for Forrest's brief informal prayer service:
Trinity Episcopal Church, Upperville
Wednesday, August 27 at 9 AM
Officiated by by Rev. Rob Banse
Meet in Trinity Church courtyard at 9AM
The outdoor chapel is a lovely five minute walk from the church (Van available for folks who desire to ride)
Polite pooches on a leash are welcome
Thank you for coming if you can. If you can't be there, thank you for joining in spirit and prayer.
This precious Sunday was made even more magical by time spent outdoors at brunch with the Lees. Forrest's lifelong friend, Madison, and her sister Megan always bring us love, laughter and joyful memories.
Giving thanks today for faith, family, friends, and a wonderful Sunday at home. Only thing missing was Austin!
Wishing you all Love & Peace,
Mum
Wednesday, August 20, 2014
Summer Recap and Surgery Preview
Angel, Gio, Shayna and 44 at King Pinz |
It's been a wonderful summer. Knowing Forrest has the first of several major surgeries scheduled August 27 at Johns Hopkins, we crammed as much quality time as we could into the past few months. Family trips to Bermuda and the Outer Banks reaffirmed our belief that, as Forrest says, "Anything is possible!"
Forrest's friends infused his summer with their love, enthusiastic activities, and invigorating positive energy! In addition to activities and fun, friends Gio and Nick (and Bro Austin) helped keep Forrest safe during the night through overnight shifts in the ManCave.
Working with Kay and Del, Forrest gained muscle mass, balance, and endurance. Under Tami's guidance and tutoring, Forrest's speech and cognitive abilities continue to expand.
With Pop's terrific cooking, he gained 16 pounds this summer and hit his pre-surgery goal of 165 this week! And through music therapy with Tom and fabulous camp activities at A Place to Be, Forrest's voice, character, and confidence have all soared to new heights.
As his surgeon at Johns Hopkins, Dr. Kumar, exclaimed at Forrest's recent pre-op examination, "Forrest you look great. You have come so far and have optimized your condition for surgery!"
That was the plan. Forrest is strong. He is ready. So next Tuesday we travel to Johns Hopkins and on Wednesday, Forrest will undergo a groundbreaking 10 hour surgical procedure. The surgery involves the transfer of a full muscle flap from Forrest's back to his "noggin" (as he calls it). This new tissue will provide some protection for his brain and vital circulation to support his beleaguered scalp. We are anticipating a 7 to 10 day hospital stay, if there are no complications, and a 10 to 12 week recovery period. Additional surgeries are anticipated 6 to 12 months later to harvest healthy bone from the back of his skull and implant it within the new muscle flap. This will finally create a safe environment for his brain and a complete skull, without using any foreign prosthetics.
We are eternally grateful for the family, friends, and support team that have given Forrest such a terrific summer and such a strong start to the next chapter of his recovery. We will update the blog next week from Johns Hopkins to keep you posted on the Comeback Kid's progress.
Love,
Mum & Team Forrest
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44 and Megan doing a mirror activity at APTB Mentor Camp |
Pilates with Kay |
Arm wrestling with Del Video of arm wrestling: https://www.youtube.com/watch?v=UGSo-W22vBM |
Pool party with Austin, 44, Tori and Nick |
Football with Nick and Gio |
Monday, August 11, 2014
44
I wrote a musical with Mr. Sweitzer called "44" to share my story....from swimming with dolphins to adventures with Austin to the challenges I have faced since I hurt my noggin. The show was written for a cast of nine people to help be my "voice". The skilled cast members - Kyle, Lauren, Megan, Brendan, Crystal, Cameron, Amy and Nathan have been fun to work with and get to know. At our most recent rehearsal, we had not seen each other for at least a month. We were so crazy and loud Mr. Sweitzer said it was like a big family reunion. In October, we will be performing "44" as part of "The Same Sky Project" for thousands of school students, to share our message of acceptance, hope and living a big life, despite challenges. Yesterday we performed a staged reading of my show and there are some pictures below. Here's the last part of the script.I hope you like it and will come see our show in the fall.
So, I want to tell you all if you ever snowboard or do anything that could be dangerous,
listen to what they say and be prepared. Wear your helmet!
But even more importantly, never take anything for granted.
Walking, talking, eating, hanging out with your friends
Your life can change in an instant
And whatever you do, tell your family and friends you love them!
On the morning I left to snowboard, on my way out the door, my mom said
But even more importantly, never take anything for granted.
Walking, talking, eating, hanging out with your friends
Your life can change in an instant
And whatever you do, tell your family and friends you love them!
On the morning I left to snowboard, on my way out the door, my mom said
"Have fun Forrest! I love you!" And I gave her a big hug.
She has never forgotten to tell me she loves me and I know that is the
She has never forgotten to tell me she loves me and I know that is the
biggest reason I am here in front of you today.
Not everyone has a TEAM 44 beside them, and I am aware of that
But what you do have is your family, friends, teachers and mentors who you can reach out to
Since my accident, I have ridden a horse
Played lacrosse
Swam
Starred in my own show
Spent time with my friends
Graduated from High School
Marched in a parade with Toliver
Raised money for organizations like "A Place to Be"
If I have learned anything, I have learned that if you are a kind person and show others love,
Not everyone has a TEAM 44 beside them, and I am aware of that
But what you do have is your family, friends, teachers and mentors who you can reach out to
Since my accident, I have ridden a horse
Played lacrosse
Swam
Starred in my own show
Spent time with my friends
Graduated from High School
Marched in a parade with Toliver
Raised money for organizations like "A Place to Be"
If I have learned anything, I have learned that if you are a kind person and show others love,
when you are in need, those people will be right beside you to cheer you on.
Thank you all for cheering me on and thanks to the awesome 44 cast for helping me tell my story!
- Forrest
"Underwater life is fun! Swimming in the golden sun!" |
"My brother, my friend, when it rains...you bring the sun!" |
Myself, Kyle, Nathan, Brendan, Crystal, Cameron, Amy, Toliver, Lauren and Megan - the incredible "44" cast! |
Sunday, August 3, 2014
Forrest's Story Makes the Washington Post 8/3/14
Dear Forrest,
Today the article about your journey came out in the Metro Section of Washington Post. We hope that it creates greater awareness about the life changing power of Music Therapy and provides hope and encouragement to others struggling to recover from Traumatic Brain Injuries.
To read Forrest's article, click here: Washington Post
You are spending your summer getting stronger in every way; physically, emotionally, spiritually. Your humor and wit are keeping pace! As your friends and family challenge you to reach a little further and dig a little deeper, we find more often than not we are struggling to keep up with you!
A week in Emerald Isle, NC allowed us to spend time with Austin and visit him at Duke's Marine Lab in Beaufort. You created new football passes on the beach with pals Tori and Nick and practiced yoga moves and guitar in the evenings. You even out "chilled" Cousin Susan in a very competitive beach lounging contest!
Its good to be back at BrightWood now, with just 3 1/2 weeks until your next surgery, we will relish every moment together, inspired by your determination and optimism. Onward and Upward, Champ!
With Love and Gratitude to your amazing brother, father, friends, extended family, mentors, teachers, doctors, nurses, and many followers who believe in you and sustain us all.
Mum
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Cousin Susan came to visit us at the beach and joined us for dinner! |
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Jamming with Nick (and Tollie) |
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Cousins Cailin and Eric |
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Yoga with Aunt Tricia, Tori, Mum and Nick |
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Tori, Tollie and I buried Nick |
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Enjoying food made by Pops! |
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