Oh Forrest, it's your Mum. I'm sorry I haven't written in a while. The days are so full and to be honest, I've been kind of blue lately. Maybe it's the incongruity of a brilliant Spring day when you should be out and about with your friends, or coming home from your freshman year at CNU for a visit... all long legged and grinning, brimming with some mischief.
I know the rules: " Never look back, Never look down, Count our many blessings, and Focus only on the next twelve hours."
And we do have many blessings. We are almost 6 weeks out from your ninth surgery without any big complications. You are still gaining weight, up to 145 pounds now. You are regaining some control over your hands again. Amazingly, most mornings you wake with a smile on your face! Your private duty nurses and NRH nurses, therapists, and doctors are talented, devoted and enthusiastic about your every effort. Austin, your incredible brother charges in after a full day at work and brightens up your world and mine. Day after day he tries to engage you in secret handshakes, balloon tosses, lacrosse practice, sword fights, or animated stories of your many shared escapades. And every day you struggle to respond to him. Yesterday, you finally managed to lift your index finger, open your hand to slide your palm against his and finish the, almost secret, handshake with a fistbump! The best since the first week in October!
The bond you share gives me courage, hope, and renews my faith each day. Neither of you will ever give up. In spite of all the set backs, the endless months of hospitalization, and the grueling task of just getting through the next twelve hours again and again...you both still shine. You both still face each day with a smile and a "Bring it On" Attitude. That attitude is the most powerful force imaginable. And so one day at a time, we will succeed. We will keep building this twelve hours on the next until our Forrest is strong and whole again.
As Your Pops often points out our twelve hour plan almost always changes and so it has again. The doctors decided to dial down your shunt yet again today. So we must stay put at NRH for another Cat Scan on Wed and if all is well, we hope to return to BrightWood on Thursday.