A rough day for Team Forrest. After further consideration the team at Johns Hopkins decided that Forrest’s storming needed to be under better control before he can be further evaluated for what lead to his regression in the first place. So no trip to Johns Hopkins tomorrow. A disappointment for the team 44 not to be going closer to home, but only for a moment. That’s all the time we could spare.
The place where Forrest made the most progress after his UVA experience was Shepherd Center. Hopefully we will move him there tomorrow and we all hope he will make the same sort of progress that he made before and we can get the storming under control. Dr. Kaelin and his team of doctors, nurses and therapists were magic for Forrest before and we are all hoping a repeat engagement that is even better.
So the plan changes and it remains the same. Get Forrest better, we go forward one day at a time. He is trying so hard and he tells it to in very small ways, which is the only way he can right now. But he is in there and he is giving it everything he can to get back to us.
So Hopkins or wherever he goes after he gets thru the storms and progresses will have to wait to for another day. First to Shepherd , then on to the rest.
Thanks for everyone’s support.
Dad and Team Forrest