Thursday, December 27, 2012
Picture of the Day 12/27/12
Quote of the day: "Once you choose hope, anything is possible." Christopher Reeve
Tuesday, December 25, 2012
Merry Christmas!
Merry Christmas from Forrest, Austin, Rae and your author today Kent.
Forrest continues to make progress almost daily. He has recently had a birthday and turned 20. He had a fun party with his friends the other night and the family was home and had a great Christmas together.
As usual SuperBro and SuperMom have been doing a great job and spend an inordinate amount of time working with 44 and no doubt have helped him progress so well. We have had a great team healing him throughout this year. Tami, The Medical Team nurses, Dell, Steven, Tom Sweitzer, his teachers, therapists and Rebekah and many others have helped him. We also appreciate the many great friends who have come to visit him, party with him and Facetime and Skype with him. It really keeps him energized. He got the new Wii U for Christmas and is anxious to play it with his friends.
The amazing things that he has done in the last few weeks is unbelievable. He has started to form words and then has started speaking very quietly as well. The words are very quiet and few and he has trouble with some of the sounds but continues to make progress on a daily basis. He continues to improve on other fronts and can walk several "laps" around the room with balance assistance. He is making progress on almost every front, some of it is hard but he continues to work and make progress every day.
The medical issues are still daunting and we continue to tackle them with our great group of nurses and Doctors. He still is fighting the infection that recently sent him back to the hospital but his incision is healing well and he continues on with antibiotics via the PICC line. He will likely switch to oral antibiotics after he finishes this course of IV. He battles vertigo and is working on his swallowing and medication issues. So he fights on making progress on many fronts. After a rough almost two years it is great to see him smiling and working so hard.
Tuesday, December 18, 2012
Christmas Miracles
He next began humming more consistently on command, a new skill. Then he started opening his mouth while humming to quietly say the word “mum”, which made Rae's homecoming yesterday truly extraordinary. Then last night, during physical therapy, when asked how many pull ups he wanted to do, Forrest quietly but clearly stated “ten”. A simple word, but filled with promise of amazing things to come. Forrest, however, was still not done with his miracles! While sitting around talking about all his great accomplishments, someone stated that Forrest was awesome. Forrest nodded his agreement, and then with prompting and encouragement, clearly said his first sentence, since May 25, 2011, “I’m awesome”. The ManCave exploded with cheers and whooping as amazement and excitement filled us all. Forrest really IS awesome – bringing us a Christmas miracle and making Rae’s Christmas wish come true, all with two magical words.
We can't wait for Forrest to share this life changing new step with friends and family over the holiday season. Contact Tami or Austin to get yourself on Forrest’s social calendar!
Tuesday, December 11, 2012
Picture of the Day
Forrest has settled back in at Brightwood. We were so excited to see that Forrest's little detour to Washington Hospital Center did not result in any apparent physical or cognitive setbacks! His dedicated nurses from the Medical Team have been keeping a diligent eye on his new PICC line and incision sites, and a check up today with Dr Falkenstein resulted in a great report! It has been a busy few weeks with travels and visitors. Rae left Saturday for work in Malaysia, waving at Austin in the sky as he flew back from a conference in Hong Kong. Kent returned from a conference right before Forrest broke free from the hospital. Amazing Aunt Tricia left yesterday and we now are enjoying the help and company of the wonderful Aunt Lynn. We are so thankful for all the people that have been here during Forrest's journey to recovery!
Today, Forrest has been busy, with Music Therapy and school then some new physical/occupational therapy exercises with his team. He has been frequently sharing laughs with us and it is great to hear and see the laughter that sometimes shakes his whole body. He is currently engaged in a competetive game of chess with Austin. Forrest has only needed a few reminders of the rules, even though he has not played since before the accident. That's our champion!
Thursday, December 6, 2012
Yahoo Heading Home 12/6/12
Tuesday, December 4, 2012
Update from WHC 12/4/12
Monday, December 3, 2012
The Come Back Kid 12/3/12
Friday, November 30, 2012
Unfortunate Detour 11/30/12
Love. Rae
Sent from my iPhone
Wednesday, November 28, 2012
picture of the day and forrests first post
we're amazing! with alix |
family is splendid |
Saturday, November 24, 2012
Thanksgiving 2012
This Thanksgiving we are blessed to be home together, surrounded by friends, family and The Medical Team's ever vigilant nursing staff. While you're not yet eating, you are clearly nourished and sustained by their love, faith, and encouragement. You are reenergized by their enthusiasm for your progress and do your very best physical and cognitive work when they are by your side cheering you on! Below are some highlights from the week, including your first stroll in the grass, appropriately in your Grandmother Boo's Memorial Garden, with your family celebrating this milestone! Another of you standing tall with Peter & Mat sporting a new hat Peter gave you and one of you teaching Sarah, Keith & Madison how to "talk" with your Dynavox! With love to all your friends & Thanksgiving for our many blessings, Mum
Sunday, November 18, 2012
Update 11/18/12
Below are a couple of highlights from the week: The difficult work of standing tall and battling your unpredictable cardiovascular system is made more manageable with Sarah's encouragement! Visits from faithful friends like Peter are so much fun for both of you now. And their presence motivates you to keep pushing your physical boundaries and to share your thoughts using your Communication devise. We remain eternally grateful for your brother's unshakable determination and your friends' love and belief in your future. With hope, faith & love, Mum
Wednesday, November 14, 2012
An Amazing Accomplishment 11/14/12
And Forrest, your Mum and your whole Team are thrilled. We can't wait to see what you will do next. With love and gratitude overflowing, Mum
Sunday, November 4, 2012
Pictures of the Week. 11/4/22
Wednesday, October 31, 2012
Update: Halloween 10/31/12
Hope everyone made it through the hurricane alright. We did fine here at Brightwood, the generator worked as planned and kept Forrest comfy in his man cave. Thank you for the blog messages, we love reading them to him. Brian Selfe's post was wonderful in illuminating both the dark and the wonderful times in the last year, and showing just how far up the mountain Forrest has climbed. Speaking of climbing, Forrest continues to make great strides during assisted walking sessions and he continues to fight hard in other therapy sessions daily. He continues to have trouble with dizziness, motion sickness, and emesis, so he is making a trip to Faquier hospital today for an ultrasound. We asked him if he wanted to stay at the hospital instead of coming home this afternoon, and he gave the firmest head shake possible, so I guess we'll bring him back afterward... :)
All the best from Brightwood,
Austin
Waving goodbye at Departure Time |
Sunday, October 21, 2012
Pictures of the Week 10/20/12
Monday, October 15, 2012
Update - 10/15/12
From October 15th, 2011 Mum and Forrest in the ICU |
From Neuro ICU recovering from surgery your blog entry on 10/15/11: "For now we count our blessings. He is alive, he is able to understand us and knows that we are always by his side. We are eternally grateful for your unending love, prayers, encouragement, and most of all your belief in Forrest and confidence that he will heal, he will return to his home, his friends, his future....As I sit with you now Forrest, I see a quiet determination alive in your eyes. We will never give up, never surrender. No matter how long it takes or what obstacles we encounter. Together we will go over, under, around, or straight through them. We are still on our road home. We will get there and it will be all that we dream of."
And the Miracle is unfolding. You are home Forrest and healing, gaining strength each day with the love and encouragement from your unshakable friends and the prayers, support and perseverance of so many of our family members, friends, and community. Just today, after months of trying, you finally made music with Tom, blowing ever so faintly but clearly into the slide whistle. Later you attended, via Skype, the second annual Dolphin Quest Bermuda fundraiser for adaptive sports, an event launched in your honor last year. You thrilled us all by launching the first dolphin bow with your own salute!
Forrest making sounds on the slide whistlewith Music Therapist Tom |
Dolphin Quest Bermuda crew sharing "shaka" signs with Forrest and Team following the WindReach fundraiser |
Forrest "freestyle" walking outside with help |
Tuesday, October 9, 2012
New Team Member and Video of the Day - 10/9/2012
One of the goals we have with Forrest is to have him standing at some point each day to help improve circulation and of course, strength. Whether it is standing bedside, on the tilt table or walking in the StarGait, everyday Forrest firmly plants his feet and stretches his 6'3" frame until he is upright and towering over all of us. Today, we opted to skip the usual options and instead used Austin, Stephen, Gayle and Tami to practice what we called "freestyle" walking. Watch the video below to check out the independent movement Forrest is making with BOTH legs!
Thursday, October 4, 2012
Pictures of the Day 10/4/12
Monday, October 1, 2012
Picture of the Day - 10/1/2012
Tuesday, September 25, 2012
Pictures of a Great Day 9/25/12
Monday, September 24, 2012
Picture of the Day - 9/24/12
Forrest and friend Caroline enjoyed a competitive game of "Go Fish" this morning. Forrest started the game with no pairs and despite making a late surge, Caroline ended the game victorious! We are excited for a rematch!
Thursday, September 20, 2012
Pictures of the Day(s) 9/20/12
Tuesday, September 11, 2012
Johns Hopkins - Update
We are on our way home now. Forrest is resting on his gurney, Pops is at the wheel. Nurse Gayle is ever vigilant protecting Forrest's airway, Austin our Chief Operations Officer, is monitoring traffic, Tami has jetted ahead transporting Forrest's wheelchair and preparing the Man Cave for our arrival, and as MaMa Bear I am counting our many blessings and giving thanks for this incredible Team 44. A Team now of hundreds, if not thousands, of family, doctors, nurses, teachers, therapists, aides, technicians, peers, friends, followers, prayer warriors...optimists and believers of second chances & healing Miracles.
We are eternally grateful that Forrest's spirit is still strong, that his playful sense of humor brightens our days, that he knows he is loved & treasured, and that our family & friends see his progress and have never waivered in their faith that he will recover.
Forrest IS The Come Back Kid. And he is coming back, stronger every day lifted up by faith, love, and persistent pursuit of the goal, his full recovery.
Here is Forrest & his Entourage at Johns Hopkins today.
Thursday, September 6, 2012
Picture of the day 9/6/12
Tuesday, September 4, 2012
Picture of the Day 9/4/12
Wednesday, August 29, 2012
Tuesday, August 28, 2012
Picture of the Day - 8/28/12
Friday, August 24, 2012
2nd Picture of the Day 8/24/12
In Route to Johns Hopkins
-Austin
Brought to you by Team 44 Medical Transport Division
(Click on image to see full picture)
Wednesday, August 22, 2012
Video of the Day 8/22/12
Wednesday, August 15, 2012
Picture of the Day 8/15/12
Thursday, August 9, 2012
Update: August 9, 2012
Monday, August 6, 2012
Update: August 6, 2012
Forrest shaking Dr. Gallegos's hand |
Aunt Tricia(dog trainer extraordinaire), on left, facilitates Forrest dropping the ball for Sundance to retrieve |
Whitney & her Mom visit |
Nap time |