Aunt Tricia has returned to Oregon after a month of “44”duty. Thanks for all your tireless help Tricia! Aunt Lynn returns tomorrow to help us for a week. Dad has been coming down and trying to help the team on weekends and Mom and Austin continue to be the stalwart constants in Forrest’s battle. It is likely we will move to Washington DC once he is stabilized medically (hopefully in the next week or so) and try to progress with rehab at National Rehab Hospital. We will likely repeat the process of finding a hotel and then try to find some nearby apartments that can house his support team.
On the medical front the biggest issues currently are a clotting problem called Heparin Induced Thrombocytopenia and Thrombus (HIT or HITT). It is essentially a problem with him being administered heparin for long periods of time and his body developing antibodies to them. This requires a change in his anticoagulant therapy and although it has not developed into a significant problem at the moment it has the potential to be a very serious problem. It can cause significant clotting disorders or stop the blood from clotting. It takes months for the antibodies to slowly fade away. This means all non-emergency surgery will have to be postponed for several months.
On the other medical fronts he is slowly recovering from both his lung and his Antibiotic induced intestinal infection. They have both sapped his energy and he struggles to participate in his therapy sessions. He continues to try and has never given up. His other significant issue is thought to be centrally induced extensor muscular contractions that cause significant charley-horse like pain that is almost body wide. All of us spend countless hours gently massaging his cramping muscles with Mom and Austin being the most effective. Various teams here at UVA are consulting on these problems and trying to devise therapeutic and medical strategies to improve his situation.
Sundance has returned to the 44 team this weekend and wears his Certified Therapy Dog bandanna proudly and gives Forrest and his team a much needed morale boost.
There are a lot of Super Heroes in this story. Many family members and friends who play countless needed support roles. There are his peers who remain devoted supporters and believers in Forrest. Good friends and complete strangers who step forward to rally around Forrest with offers of housing and help. The biggest Hero is Forrest who refuses to quit and Mom and Austin who have become 24/7 expert and loving medical aides to give him every chance to recover and come back to us all.
Dad and Team 44
|The whole family together, Sundance even has his own isolation gown.|