Forrest slept badly last night but that doesn’t change the therapy schedule so he was up and at it this morning. He seemed a little down during sessions and meals today and couldn’t do his last group session. We have to expect some down days and steps back coupled with all of his amazing progress and compared to where we started a couple weeks ago.We had a really good discussion with him this evening with him asking about his new face. We reassured him that it is the same old Forrest face as handsome as ever once they put the top of his noggin back on. We also assured him all of his parts work and that he is making tremendous strides. The lid replacement is scheduled for about 3 weeks if all of the swelling in the brain is subsided.
He is having trouble with his trachea tube and it keeps slipping out without him grabbing for it. The Doctor came in to see the problem and had respiratory therapy techs replace it with a longer more flexible one. When it was put in he lapsed into a coughing spasm for so long he threw up which is worrisome and difficult to watch and help with. He didn’t appear to aspirate anything which is great news. We have him on his side so he can vomit more safely and after retching he pats each of us to reassure us since he can see the worried looks on our faces. Typical Forrest that he is in the midst of a drama and is worried what the people around him are concerned about. He is trying so hard to be brave and not worry us that he makes us cheer up when we start to get worried or depressed.
After the problems this evening and a new group of nursing staff that doesn’t know him as well, we decided to go back to all night monitoring with Aunt Lynn (who cooked us dinner) and Austin (posting this blog) are taking the night shifts so Rae and I can attend the meals and some of the therapy sessions tomorrow and participate in the goal setting session. Slightly frustrating when you think those days are behind you and then at a moment’s notice you are right back to it.
Rae and I toured the Shepherd Pathways which is the outpatient center for Shepherd. It is in a slightly different area of Atlanta and seemed very nice. He could hopefully move there in about a month if things continue to go well. We also toured a canine school with Sundance so he can make his first steps toward becoming a therapy dog and helping both Forrest and other people in similar circumstances.
Quote of the day from a movie that Forrest, Austin and I watched tonight. One of our favorites, Galaxy Quest. “Never give up…Never surrender”! Tim Allen
Dad and Team Forrest
Forrest looking at facebook
Forrest and Austin headed to a therapy session